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All About AlbinismYou probably have heard the term 'albino' referring to a person with very light skin and hair. But, did you know that people with albinism almost always have some degree of uncorrectable low vision? Do you know what it is like to live with albinism?Join Seminars@Hadley for a 60 minute discussion all about albinism. Senior Vice President Dawn Turco will question a panel of experts on several aspects of the condition including; the genetics of albinism, the low vision associated with albinism, prominent psycho-social issues people with albinism and parents of children with albinism face and educating a child with albinism. The panel will also address the myths and misconceptions about albinism and talk about NOAH (National Organization for Albinism and Hypopigmentation).Panelists include Sheila Adamo, Chair of the NOAH Board of Directors (mother of four, 11 year old son Joey has albinism), Murray Brilliant PhD, Director at the Center for Human Genetics at the Marshfield Clinic Research Foundation, Susan Dalton, M.S.Ed., CVRT, Transition Specialist (mother of two grown children with albinism), Kelsey Thompson, immediate past Chair of the NOAH Board of Directors (a person with albinism) and Michael McGowan, NOAH Executive Director (a person with albinism). |
